National Breast Cancer Coalition (NBCC) Data: Difference between revisions
Lorikrammer (talk | contribs) Created page with "== Introduction == The National Breast Cancer Coalition (NBCC) data contains twelve terabytes of -omics data for 26,546 participants. This data contains a cohort of 575 breast cancer patients and 3,479 patient family members. The original data was collected through the DNA.Land project (<nowiki>PMID 29374253</nowiki>) and is currently housed on the GW-FEAST data browser. Access to this data is restricted and must be approved by NBCC on a case-by-case basis through the NB..." |
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The National Breast Cancer Coalition (NBCC) data contains twelve terabytes of -omics data for 26,546 participants. This data contains a cohort of 575 breast cancer patients and 3,479 patient family members. The original data was collected through the DNA.Land project (<nowiki>PMID 29374253</nowiki>) and is currently housed on the GW-FEAST data browser. Access to this data is restricted and must be approved by NBCC on a case-by-case basis through the NBCC Data Access Request (DAR) Form. | The National Breast Cancer Coalition (NBCC) data contains twelve terabytes of -omics data for 26,546 participants. This data contains a cohort of 575 breast cancer patients and 3,479 patient family members. The original data was collected through the DNA.Land project (<nowiki>PMID 29374253</nowiki>) and is currently housed on the GW-FEAST data browser. Access to this data is restricted and must be approved by NBCC on a case-by-case basis through the NBCC Data Access Request (DAR) Form. | ||
The NBCC data has been de-identified using a tool developed by Dr. Robel Kahsay from our group<sup>1</sup>, which uses the Safe Harbor approach to de-identification. This tool is specific to the NBCC data and any changes to the parameters will be captured in subsequent versions. | == De-identification == | ||
The NBCC data has been de-identified using a tool (NBCC De-IDN Tool v1.0) developed by Dr. Robel Kahsay from our group<sup>1</sup>, which uses the Safe Harbor approach to de-identification. This tool is specific to the NBCC data and any changes to the parameters will be captured in subsequent versions. | |||
[[File:Nbcc deidn tool v1.0.png|frameless|743x743px]] | |||
== | == Data Schema == | ||
== References == | == References == | ||
<sup>1</sup>Dr. Robel Kahsay (Mazumder Lab, Dept. of Biochemistry & Molecular Medicine). GW Review Board (IRB), FWA00005945. Subject: NCR224302, "Analysis of prostate MRI image data and its integration with biomedical data" Haji-Momenian, Shahriar (Shawn), MD, Sepulveda, Jorge, MD, PhD; Whalen, Michael, MD; Kahsay, Robel, PhD | <sup>1</sup>Dr. Robel Kahsay (Mazumder Lab, Dept. of Biochemistry & Molecular Medicine). GW Review Board (IRB), FWA00005945. Subject: NCR224302, "Analysis of prostate MRI image data and its integration with biomedical data" Haji-Momenian, Shahriar (Shawn), MD, Sepulveda, Jorge, MD, PhD; Whalen, Michael, MD; Kahsay, Robel, PhD | ||
Revision as of 19:25, 13 March 2025
Introduction
The National Breast Cancer Coalition (NBCC) data contains twelve terabytes of -omics data for 26,546 participants. This data contains a cohort of 575 breast cancer patients and 3,479 patient family members. The original data was collected through the DNA.Land project (PMID 29374253) and is currently housed on the GW-FEAST data browser. Access to this data is restricted and must be approved by NBCC on a case-by-case basis through the NBCC Data Access Request (DAR) Form.
De-identification
The NBCC data has been de-identified using a tool (NBCC De-IDN Tool v1.0) developed by Dr. Robel Kahsay from our group1, which uses the Safe Harbor approach to de-identification. This tool is specific to the NBCC data and any changes to the parameters will be captured in subsequent versions.
Data Schema
References
1Dr. Robel Kahsay (Mazumder Lab, Dept. of Biochemistry & Molecular Medicine). GW Review Board (IRB), FWA00005945. Subject: NCR224302, "Analysis of prostate MRI image data and its integration with biomedical data" Haji-Momenian, Shahriar (Shawn), MD, Sepulveda, Jorge, MD, PhD; Whalen, Michael, MD; Kahsay, Robel, PhD