GW-FEAST Data De-identification: Difference between revisions
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← <small>Go Back to the [[GW-FEAST|GW-FEAST Home Page]].</small> | ← <small>Go Back to the [[GW-FEAST|GW-FEAST Home Page]].</small> | ||
== Introduction == | |||
All GW-FEAST datasets housed within the secure data environment are de-identified. This process varies slightly between data sources and each data source has it's own versioned de-identification tool and protocol. Our implementation follows the ''Safe Harbor'' recommended deidentification protocol with modifications based on the ''Expert Determination'' method. This de-identification workflow is illustrated below. | All GW-FEAST datasets housed within the secure data environment are de-identified. This process varies slightly between data sources and each data source has it's own versioned de-identification tool and protocol. Our implementation follows the ''Safe Harbor'' recommended deidentification protocol with modifications based on the ''Expert Determination'' method. This de-identification workflow is illustrated below. | ||
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[[File:Nbcc deidn tool v1.0.png|frameless|743x743px]] | [[File:Nbcc deidn tool v1.0.png|frameless|743x743px]] | ||
=== GW-FEAST De-identification Data Templates === | |||
Single-patient data templates for each data source are available for download on the [[GW-FEAST De-identified Data Templates]] page. | |||
== GWDC De-identification Tool == | == GWDC De-identification Tool == | ||
The GW Data Commons (GWDC) de-identification tool is used to de-identify all GW-FEAST datasets prior to harmonization. This protocol was authored by Dr. Robel Kahsay of the Mazumder Research Group. More information is available on the [[GWDC De-identification Tool]] page. | The GW Data Commons (GWDC) de-identification tool is used to de-identify all GW-FEAST datasets prior to harmonization. This protocol was authored by Dr. Robel Kahsay of the Mazumder Research Group. More information is available on the [[GWDC De-identification Tool]] page. | ||
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== NBCC De-identification Tool == | == NBCC De-identification Tool == | ||
The National Breast Cancer Coalition de-identification tool is used to de-identify all NBCC datasets prior to harmonization. This protocol was authored by Dr. Robel Kahsay of the Mazumder Research Group and v1.0 of the tool has been approved by a representative at NBCC. Each iteration of the tool will have written approval by NBCC before use. More information is available on the NBCC De-identification Tool page. | The National Breast Cancer Coalition de-identification tool is used to de-identify all NBCC datasets prior to harmonization. This protocol was authored by Dr. Robel Kahsay of the Mazumder Research Group and v1.0 of the tool has been approved by a representative at NBCC. Each iteration of the tool will have written approval by NBCC before use. More information is available on the NBCC De-identification Tool page. | ||
Revision as of 14:45, 20 March 2025
← Go Back to the GW-FEAST Home Page.
Introduction
All GW-FEAST datasets housed within the secure data environment are de-identified. This process varies slightly between data sources and each data source has it's own versioned de-identification tool and protocol. Our implementation follows the Safe Harbor recommended deidentification protocol with modifications based on the Expert Determination method. This de-identification workflow is illustrated below.
De-identification Workflow
GW-FEAST De-identification Data Templates
Single-patient data templates for each data source are available for download on the GW-FEAST De-identified Data Templates page.
GWDC De-identification Tool
The GW Data Commons (GWDC) de-identification tool is used to de-identify all GW-FEAST datasets prior to harmonization. This protocol was authored by Dr. Robel Kahsay of the Mazumder Research Group. More information is available on the GWDC De-identification Tool page.
NBCC De-identification Tool
The National Breast Cancer Coalition de-identification tool is used to de-identify all NBCC datasets prior to harmonization. This protocol was authored by Dr. Robel Kahsay of the Mazumder Research Group and v1.0 of the tool has been approved by a representative at NBCC. Each iteration of the tool will have written approval by NBCC before use. More information is available on the NBCC De-identification Tool page.